{"id":392,"date":"2026-08-04T14:30:08","date_gmt":"2026-08-04T14:30:08","guid":{"rendered":"https:\/\/engelsman.nu\/?p=392"},"modified":"2026-09-01T09:38:22","modified_gmt":"2026-09-01T09:38:22","slug":"een-off-dagje","status":"publish","type":"post","link":"https:\/\/engelsman.nu\/?p=392","title":{"rendered":"Een off-dagje"},"content":{"rendered":"
\n
\"Off-dag<\/figure>\n<\/div>\n\n\n

Vandaag heb ik een off-dag. Dat is Parkinsons jargon om te zeggen dat de medicijnen een dagje niet werken. Ik had al slecht geslapen en voel me hyper, rusteloos en ongedurig. Zitten lukt niet. Liggen niet. Staan ook niet.<\/p>\n\n\n\n

De hometrainer<\/a>, de massagestoel<\/a> en meditatie<\/a> hebben geen enkel effect. Buiten wandelen is geen optie want het is 38 graden en met de warme wind voelt het alsof je een sauna binnenloopt. Binnen is het 26 graden, maar ik heb het (ijs)koud. is. Mijn lichaam kan de temperatuur steeds slechter regelen. Ook dat is Parkinson<\/a>. Dus ik loop rond in een pyamabroek, een shirt met lange mouwen, een sjaal om mijn nek en een dekentje over mijn schouders.<\/p>\n\n\n\n

Na vier aspirientjes geef ik het op. Ik neem een tramadol en zet een tekenfilm op in de hoop te kunnen ontspannen.<\/p>\n\n\n\n

Morgen is hopelijk weer een on-dag.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Vandaag heb ik een off-dag. Dat is Parkinsons jargon om te zeggen dat de medicijnen niet willen werken. Ik had al slecht geslapen en voel me hyper, rusteloos, ongedurig. Kan niet blijven zitten, liggen of staan. Lees verder<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[29,28,27,31,30],"class_list":["post-392","post","type-post","status-publish","format-standard","hentry","category-parkinsonperikelen","tag-medicijnen","tag-off","tag-parkinson","tag-pijn","tag-ziek"],"yoast_head":"\nEen off-dagje - Grillen met Parkinson<\/title>\n<meta name=\"description\" content=\"Ontdek wat het betekent als Parkinson medicijnen vandaag niet werken en hoe dit het dagelijks leven be\u00efnvloedt.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/engelsman.nu\/?p=392\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Een off-dagje - Grillen met Parkinson\" \/>\n<meta property=\"og:description\" content=\"Ontdek wat het betekent als Parkinson medicijnen vandaag niet werken en hoe dit het dagelijks leven be\u00efnvloedt.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/engelsman.nu\/?p=392\" \/>\n<meta property=\"og:site_name\" content=\"Grillen met Parkinson\" \/>\n<meta property=\"article:published_time\" content=\"2026-08-04T14:30:08+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-09-01T09:38:22+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/engelsman.nu\/wp-content\/uploads\/2026\/08\/c1_20260806_18154792.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"1536\" \/>\n\t<meta property=\"og:image:height\" content=\"2048\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Janos\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Geschreven door\" \/>\n\t<meta name=\"twitter:data1\" content=\"Janos\" \/>\n\t<meta name=\"twitter:label2\" content=\"Geschatte leestijd\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuut\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/engelsman.nu\\\/?p=392#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/engelsman.nu\\\/?p=392\"},\"author\":{\"name\":\"Janos\",\"@id\":\"https:\\\/\\\/engelsman.nu\\\/#\\\/schema\\\/person\\\/512b8f64da9b818adfe1062d05bd8dcb\"},\"headline\":\"Een off-dagje\",\"datePublished\":\"2026-08-04T14:30:08+00:00\",\"dateModified\":\"2026-09-01T09:38:22+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/engelsman.nu\\\/?p=392\"},\"wordCount\":146,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/engelsman.nu\\\/#\\\/schema\\\/person\\\/512b8f64da9b818adfe1062d05bd8dcb\"},\"image\":{\"@id\":\"https:\\\/\\\/engelsman.nu\\\/?p=392#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/engelsman.nu\\\/wp-content\\\/uploads\\\/2026\\\/08\\\/c1_20260806_18154792-768x1024.jpeg\",\"keywords\":[\"medicijnen\",\"off\",\"Parkinson\",\"pijn\",\"ziek\"],\"articleSection\":[\"Parkinsonperikelen\"],\"inLanguage\":\"nl-NL\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/engelsman.nu\\\/?p=392#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/engelsman.nu\\\/?p=392\",\"url\":\"https:\\\/\\\/engelsman.nu\\\/?p=392\",\"name\":\"Een off-dagje - 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